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Vol. 24 - Num. 95

Original Papers

Knowledge and opinion on integrated care for children with cerebral palsy in Primary Care

Lidia Aguilera Nietoa, M.ª José Peláez Canterob, Daniel Hinojosa Nogueirac, Josep Vicent Balaguer Martínezd

aPediatra. CS Palma-Palmilla. Málaga. España.
bPediatra. Unidad de Crónicos Complejos y Cuidados Paliativos Pediátricos. Hospital Regional Universitario de Málaga. Málaga. España.
cDepartamento de Nutrición y Bromatología. Instituto de Nutrición y Tecnología de los Alimentos. Centro de Investigación Biomédica. Universidad de Granada. Granada. España.
dPediatra. CAP Sant Ildefons. Cornellà de Llobregat. Barcelona. España.

Correspondence: L Aguilera . E-mail: lidia.agnil@hotmail.com

Reference of this article: Aguilera Nieto L, Peláez Cantero MJ, Hinojosa Nogueira D, Balaguer Martínez JV. Knowledge and opinion on integrated care for children with cerebral palsy in Primary Care . Rev Pediatr Aten Primaria. 2022;24:261-71.

Published in Internet: 11-10-2022 - Visits: 639

Abstract

Objective: patients with cerebral palsy (CP) require multiple treatments and services. The primary objective of the study was to describe the opinion, perception and knowledge of primary care (PC) paediatricians about the comprehensive approach to the care of children with CP and their current management of this condition.

Material and methods: cross-sectional, descriptive and nationwide study carried out through an online survey of paediatricians and family physicians dedicated to paediatric care and practicing in the PC level in January and February 2021.

Results: we received a total of 335 responses. Ninety-one percent of respondents thought they had insufficient training and limited knowledge, and 65% did not considered themselves adequately qualified to manage children with CP. In addition, 97.3% believed that training on CP is necessary and 99% that specific protocols need to be developed. Of all respondents, 57.2% would like to be the care coordinator working in collaboration with hospital paediatricians. Last of all, 75% believed that the caregivers were not satisfied with the care received, and that the provision of comprehensive care to children with CP from PC or the availability of specific units for their management would improve family satisfaction, a result that was statistically significant.

Conclusions: most paediatricians do not feel qualified for the management of children with CP from PC and consider that training and the development of specific guidelines are necessary. Professionals believe that an integrated, comprehensive approach to the care of these patients would improve the quality of life of families, and advocated for hybrid care coordination models.

Keywords

Cerebral Palsy Primary health care

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